Rock Island Today

State Senator Neil Anderson has introduced Senate Resolution 25 (SR 25), declaring May 2025 as Prader-Willi Syndrome Awareness Month. He said that, along with personal testimony from the Avart family, the resolution will help raise awareness and explore new ways to treat the condition. Anderson made this statement on Facebook on February 4.

"Today, alongside Chris and Amy Avart of Mason City, I was honored to present Senate Resolution 25 to the Senate Public Health Committee," said Anderson, according to Facebook. "This resolution declares May 2025 as Prader-Willi Syndrome Awareness Month. Through SR 25 and the personal testimony of the Avart family, I hope we can further raise awareness and explore new ways to treat the disease."

His Facebook post included a link to SR 25, which highlights the complexity and rarity of Prader-Willi syndrome and its impact on those affected. The resolution emphasizes that early diagnosis enables families to access treatment, intervention services, and support from healthcare professionals. It also notes that families can find support from advocacy organizations and others involved with the condition. Research has led to potential treatments that may improve patients' quality of life, and the resolution calls for further research. The resolution was sponsored by Anderson and Senator Javier L. Cervantes.

Screenshot of State Senator Neil Anderson's Feb. 4 Facebook post | State Senator Neil Anderson's Facebook page

According to the Mayo Clinic, Prader-Willi syndrome is a genetic condition causing patients to feel constantly hungry without feeling full. Symptoms can appear at birth and evolve as individuals grow into childhood and adulthood. Infants with Prader-Willi may exhibit almond-shaped eyes, narrowing of the head at the temples, among other distinct facial features. They may also have a poor sucking reflex, low muscle tone, and difficulty feeding. In later stages of life, individuals may experience constant cravings, difficulty controlling weight, underdeveloped sex organs, challenges with thinking, problem-solving, learning, poor growth, and physical development.

Prader-Willi syndrome is caused by changes to genes on chromosome 15, according to the Cleveland Clinic. These changes can include chromosomal deletion or inheritance of two inactive maternal copies of chromosome 15 instead of one maternal and one paternal copy or a translocation where a piece of chromosome 15 attaches to a different chromosome. Treatment options noted by the Cleveland Clinic may include special bottles for infants, dietary management, medication to increase certain hormones, and supportive therapies.

Senator Anderson has represented the people of Illinois's 47th District since 2015. He grew up in the Quad City area and worked in his family’s flooring business before joining the University of Nebraska football team. After earning his paramedic license, he joined the Moline Fire Department where he continues to serve.