Rock Island Today

The Illinois Senate has given unanimous approval to Senate Resolution 25, which designates May 2025 as Prader-Willi Syndrome (PWS) Awareness Month. This legislative action was led by Senator Neil Anderson from Andalusia.

The initiative for this resolution came from Chris and Amy Avart of Mason City. Their daughter, Esme, who is affected by PWS, inspired the request. The Avarts shared their experiences with lawmakers earlier this year during a session of the Senate Public Health Committee, highlighting the need for increased awareness about this rare genetic disorder.

Senator Anderson remarked on the commitment shown by the Avarts: “Each day, Chris and Amy wake up with an unwavering commitment to caring for Esme. Their courage and determination brought this issue to our attention, and through this resolution, we hope to raise more awareness and give the PWS community a stronger voice in their advocacy efforts.”

Prader-Willi Syndrome impacts approximately 1 in every 15,000 children due to a defect on the 15th chromosome. It results in significant neurological, metabolic, and behavioral issues. One of its most challenging symptoms is an unrelenting feeling of hunger caused by impaired communication between the brain and stomach.

With May now recognized as Prader-Willi Syndrome Awareness Month in Illinois, Senator Anderson aims to enhance public understanding of PWS. Additionally, he hopes that these efforts will contribute towards formally recognizing PWS as a disability within the state.